Press Esc to close
Sunday 25 June 2017
News updated at 2:16 PM IST

'Include haemophilia, thalassaemia in benchmark disabilities'

New Delhi, Nov 24,2012 (IANS) 20:06 IST
The Haemophilia Federation India (HFI) Saturday submitted a memorandum to President Pranab Mukherjee to include haemophilia and thalassaemia in the category of benchmark disabilities in the Rights of Persons with Disabilities Bill, 2012.

The bill, which will replace the Persons with Disabilities Act, 1995, has 18 disabilities including haemophilia and thalassaemia.

But the two disorders have been excluded from the benchmark disabilities section, which promises the security of a government job.

"Haemophilia and thalassaemia are life-threatening disorders. Affected people cannot work without job security," S.S. Roychoudhury, chief executive officer of HFI, told IANS.

He demanded the bill must be introduced during the ongoing winter session of parliament.

The HFI also sent a memorandum to the ministry of social justice and empowerment and held a demonstration in at Jantar Mantar in the capital.

According to Mukesh Garodia, a 39-year-old haemophiliac, a muscle spasm or a minor cut can be fatal for a person with the disease."A cramp in my wrist can lead to internal bleeding or profuse bleeding if I cut my finger, as the blood will not clot normally, making me bed-ridden for weeks or months at a stretch," Garodia said.

"A private employer will definitely not want to hire me because I can fall sick anytime. That's why we need job security from the government," said Garodia, a businessman from Guwahati, Assam.

The HFI has also demanded a provision for insurance coverage and employment without discrimination for people with haemophilia and thalassaemia.

Go to Top

Photo Gallery
India's Prime Minister Narendra Modi, left and Portuguese Prime Minister Antonio Costa speak...

India's Prime Minister Narendra Modi, left and Portuguese Prime Minister Antonio Costa speak...

Shiv Sena workers protest against and torch the photos of separatist leader Mirwaiz Umar Farooq...

Shiv Sena workers protest against and torch the photos of separatist leader Mirwaiz Umar Farooq...

Police escort escaped prisoner Sayed Mohammed Said from India folowing his capture and return...

Police escort escaped prisoner Sayed Mohammed Said from India folowing his capture and return...

People revel in, and birds flock fly about the high tide at the Marine drive, in Mumbai on...

People revel in, and birds flock fly about the high tide at the Marine drive, in Mumbai on...

Hindu devotees give money to a decorated elephant outside the Jagannath temple on the eve of the...

Hindu devotees give money to a decorated elephant outside the Jagannath temple on the eve of the...

Demonstrators walk behind a police officer during an anti-fascist march, in central, London...

Demonstrators walk behind a police officer during an anti-fascist march, in central, London...

A burning stunt man can be seen during a press viewing of the Stoertebeker Festival on the...

A burning stunt man can be seen during a press viewing of the Stoertebeker Festival on the...

A Dassault Rafale fighter takes part to a flying display during the 52nd Paris Air Show at...

A Dassault Rafale fighter takes part to a flying display during the 52nd Paris Air Show at...

Jools Holland performs on the Pyramid Stage at Worthy Farm in Somerset during the Glastonbury...

Jools Holland performs on the Pyramid Stage at Worthy Farm in Somerset during the Glastonbury...

People move around themselves fire's torch during the San Juan night in the small Pyrenees...

People move around themselves fire's torch during the San Juan night in the small Pyrenees...

Like us on Facebook

Copyright 2017, The Printers (Mysore) Private Ltd., 75, M.G Road, Post Box 5331, Bengaluru - 560001
Tel: +91 (80) 25880000 Fax No. +91 (80) 25880523
Powered by Yodasoft Technologies Pvt. Ltd.