Press Esc to close
Thursday 30 June 2016
News updated at 9:15 PM IST
Weather
Max: 26.3°C
Min : 20.3°C
In Bengaluru
Generally cloudy

'Include haemophilia, thalassaemia in benchmark disabilities'

New Delhi, Nov 24,2012 (IANS)

The Haemophilia Federation India (HFI) Saturday submitted a memorandum to President Pranab Mukherjee to include haemophilia and thalassaemia in the category of benchmark disabilities in the Rights of Persons with Disabilities Bill, 2012.

The bill, which will replace the Persons with Disabilities Act, 1995, has 18 disabilities including haemophilia and thalassaemia.

But the two disorders have been excluded from the benchmark disabilities section, which promises the security of a government job.

"Haemophilia and thalassaemia are life-threatening disorders. Affected people cannot work without job security," S.S. Roychoudhury, chief executive officer of HFI, told IANS.

He demanded the bill must be introduced during the ongoing winter session of parliament.

The HFI also sent a memorandum to the ministry of social justice and empowerment and held a demonstration in at Jantar Mantar in the capital.

According to Mukesh Garodia, a 39-year-old haemophiliac, a muscle spasm or a minor cut can be fatal for a person with the disease. "A cramp in my wrist can lead to internal bleeding or profuse bleeding if I cut my finger, as the blood will not clot normally, making me bed-ridden for weeks or months at a stretch," Garodia said.

"A private employer will definitely not want to hire me because I can fall sick anytime. That's why we need job security from the government," said Garodia, a businessman from Guwahati, Assam.

The HFI has also demanded a provision for insurance coverage and employment without discrimination for people with haemophilia and thalassaemia.


Go to Top

Photo Gallery
Villagers looking at a one horned rhinoceros that strayed in...

Villagers looking at a one horned rhinoceros that strayed in...

Bollywood actor Irrfan Khan during the Pro Kabaddi match between Jaipur....

Bollywood actor Irrfan Khan during the Pro Kabaddi match between Jaipur....

Illuminated Mysuru Palace during the marriage....

Illuminated Mysuru Palace during the marriage....

Vice President Hamid Ansari, Congress...

Vice President Hamid Ansari, Congress...

Fans holds an national soccer team jersey with the name and number of Lionel Messi...

Fans holds an national soccer team jersey with the name and number of Lionel Messi...

Virat Kohli interacts with children at the launch of Stepathlon Kids...

Virat Kohli interacts with children at the launch of Stepathlon Kids...

Pope Francis, left, and retired Pope Benedict XVI embrace during a ceremony...

Pope Francis, left, and retired Pope Benedict XVI embrace during a ceremony...

Horse-mounted Policemen seen at a road in Kolkata...

Horse-mounted Policemen seen at a road in Kolkata...

An egret takes off in New Delhi on Tuesday...

An egret takes off in New Delhi on Tuesday...

A typist attends a customer at a street flooded after heavy rains outside Court complex...

A typist attends a customer at a street flooded after heavy rains outside Court complex...

Copyright 2014, The Printers (Mysore) Private Ltd., 75, M.G Road, Post Box 5331, Bengaluru - 560001
Tel: +91 (80) 25880000 Fax No. +91 (80) 25880523