Press Esc to close
Sunday 01 February 2015
News updated at 8:08 PM IST
Weather
Max: 28°C
Min : 17°C
In Bengaluru
Sunny day

'Include haemophilia, thalassaemia in benchmark disabilities'

New Delhi, Nov 24,2012 (IANS)

The Haemophilia Federation India (HFI) Saturday submitted a memorandum to President Pranab Mukherjee to include haemophilia and thalassaemia in the category of benchmark disabilities in the Rights of Persons with Disabilities Bill, 2012.

The bill, which will replace the Persons with Disabilities Act, 1995, has 18 disabilities including haemophilia and thalassaemia.

But the two disorders have been excluded from the benchmark disabilities section, which promises the security of a government job.

"Haemophilia and thalassaemia are life-threatening disorders. Affected people cannot work without job security," S.S. Roychoudhury, chief executive officer of HFI, told IANS.

He demanded the bill must be introduced during the ongoing winter session of parliament.

The HFI also sent a memorandum to the ministry of social justice and empowerment and held a demonstration in at Jantar Mantar in the capital.

According to Mukesh Garodia, a 39-year-old haemophiliac, a muscle spasm or a minor cut can be fatal for a person with the disease. "A cramp in my wrist can lead to internal bleeding or profuse bleeding if I cut my finger, as the blood will not clot normally, making me bed-ridden for weeks or months at a stretch," Garodia said.

"A private employer will definitely not want to hire me because I can fall sick anytime. That's why we need job security from the government," said Garodia, a businessman from Guwahati, Assam.

The HFI has also demanded a provision for insurance coverage and employment without discrimination for people with haemophilia and thalassaemia.


Go to Top

Photo Gallery
A machine cleaning pollution from River Ganga during the Magh Mela Festival in Allahabad...

A machine cleaning pollution from River Ganga during the Magh Mela Festival in Allahabad...

Farah Khan announces the Gautam Gulati as the winner of Bigg Boss Season 8...

Farah Khan announces the Gautam Gulati as the winner of Bigg Boss Season 8...

Devotees feed Siberian migratory birds after taking a holy dip in the River Ganges...

Devotees feed Siberian migratory birds after taking a holy dip in the River Ganges...

Hingis of Switzerland and Paes of India kiss their trophy at the Australian Open 2015...

Hingis of Switzerland and Paes of India kiss their trophy at the Australian Open 2015...

Hingis of Switzerland and Paes of India celebrate the winning movement of Australian Open 2015...

Hingis of Switzerland and Paes of India celebrate the winning movement of Australian Open 2015...

A senior traffic police officer stops a truck at Qazigund as Srinagar- Jammu National Highway...

A senior traffic police officer stops a truck at Qazigund as Srinagar- Jammu National Highway...

Jacqueline Fernandez during a promotional event in Jaipur on Sunday...

Jacqueline Fernandez during a promotional event in Jaipur on Sunday...

John Abraham takes selfie with Delhi Waveriders players during their HIL match...

John Abraham takes selfie with Delhi Waveriders players during their HIL match...

Madhuri Dixit Nene with husband Sriram Nene during the 60th Britannia Filmfare Awards...

Madhuri Dixit Nene with husband Sriram Nene during the 60th Britannia Filmfare Awards...

Sonam Kapoor during the 60th Britannia Filmfare Awards in Mumbai...

Sonam Kapoor during the 60th Britannia Filmfare Awards in Mumbai...

Copyright 2014, The Printers (Mysore) Private Ltd., 75, M.G Road, Post Box 5331, Bengaluru - 560001
Tel: +91 (80) 25880000 Fax No. +91 (80) 25880523