Press Esc to close
Wednesday 07 December 2016
News updated at 7:57 PM IST
Weather
Max: 28°C
Min : 19°C
In Bengaluru
Partially cloudy

'Include haemophilia, thalassaemia in benchmark disabilities'

New Delhi, Nov 24,2012 (IANS)
The Haemophilia Federation India (HFI) Saturday submitted a memorandum to President Pranab Mukherjee to include haemophilia and thalassaemia in the category of benchmark disabilities in the Rights of Persons with Disabilities Bill, 2012.

The bill, which will replace the Persons with Disabilities Act, 1995, has 18 disabilities including haemophilia and thalassaemia.

But the two disorders have been excluded from the benchmark disabilities section, which promises the security of a government job.

"Haemophilia and thalassaemia are life-threatening disorders. Affected people cannot work without job security," S.S. Roychoudhury, chief executive officer of HFI, told IANS.

He demanded the bill must be introduced during the ongoing winter session of parliament.

The HFI also sent a memorandum to the ministry of social justice and empowerment and held a demonstration in at Jantar Mantar in the capital.

According to Mukesh Garodia, a 39-year-old haemophiliac, a muscle spasm or a minor cut can be fatal for a person with the disease."A cramp in my wrist can lead to internal bleeding or profuse bleeding if I cut my finger, as the blood will not clot normally, making me bed-ridden for weeks or months at a stretch," Garodia said.

"A private employer will definitely not want to hire me because I can fall sick anytime. That's why we need job security from the government," said Garodia, a businessman from Guwahati, Assam.

The HFI has also demanded a provision for insurance coverage and employment without discrimination for people with haemophilia and thalassaemia.

 

Go to Top

Photo Gallery
Bollywood actress Shilpa Shetty and Shamita Shetty during designer Manish Malhotra's birthday....

Bollywood actress Shilpa Shetty and Shamita Shetty during designer Manish Malhotra's birthday....

Abhishek Bachchan (L) and Aishwarya Rai Bachchan pose for a photograph...

Abhishek Bachchan (L) and Aishwarya Rai Bachchan pose for a photograph...

Bollywood actor Ranveer Singh performs yoga with Swami Ramdev at Agenda Aaj Tak 2016 Summit...

Bollywood actor Ranveer Singh performs yoga with Swami Ramdev at Agenda Aaj Tak 2016 Summit...

Sand artist Sudarshan Pattanaik creates a sand art to pay tribute to J Jayalalithaa in Puri beach...

Sand artist Sudarshan Pattanaik creates a sand art to pay tribute to J Jayalalithaa in Puri beach...

Football Players From Tamil Nadu pay tribute to Tamil Nadu Chief Minister Jayalalithaa...

Football Players From Tamil Nadu pay tribute to Tamil Nadu Chief Minister Jayalalithaa...

Well wishers of Tamil Nadu Chief Minister Jayalalithaa Jayaraman cry outside a hospital...

Well wishers of Tamil Nadu Chief Minister Jayalalithaa Jayaraman cry outside a hospital...

Prime Minister Narendra Modi pays his last respects to Tamil Nadu's former Chief Minister Jayaram...

Prime Minister Narendra Modi pays his last respects to Tamil Nadu's former Chief Minister Jayaram...

People pay homage to the body of Jayalalithaa Jayaram, a powerful politician...

People pay homage to the body of Jayalalithaa Jayaram, a powerful politician...

People pay homage to the body of Jayalalithaa Jayaram, a powerful politician who died...

People pay homage to the body of Jayalalithaa Jayaram, a powerful politician who died...

People paying their last respects to Tamil Nadu's former Chief Minister Jayaram Jayalalithaa...

People paying their last respects to Tamil Nadu's former Chief Minister Jayaram Jayalalithaa...

Like us on Facebook

Copyright 2014, The Printers (Mysore) Private Ltd., 75, M.G Road, Post Box 5331, Bengaluru - 560001
Tel: +91 (80) 25880000 Fax No. +91 (80) 25880523