Press Esc to close
Sunday 31 August 2014
News updated at 3:38 PM IST
Weather
Max: 0°C
Min : 0°C
In Bangalore
Sunny day

Before this disorder strikes your child...

Rasheed Kappan, BANGALORE,

 A cruel twist of fate shattered 30-year-old Sneha's dream of a happy family. Before her husband's sudden death, both her children were diagnosed with Thalassemia, a crippling inherited disorder characterised by abnormal Haemoglobin in the Red Blood Cells (RBCs). Left without lifelong monthly RBC transfusion and perennially anaemic, they ran the risk of dying at a tender age.

Seventy-year-old Ibrahim Khan had a large family, most of his children and grand children marrying their cousins. But the chance discovery of Thalassemia in two newborns changed all that. Tests that showed 19 family members were “carriers” of the Thalassemia gene traits, rang a bell so alarming that Khan declared he wouldn’t let anymore intra-family marriages.

Khan’s decision, influenced by Bangalore-based Rotary TTK Blood Bank’s timely intervention, might have saved several lives. For, the 19 “carriers” had one Thalassemia-affected gene and another normal gene. Marriage with another carrier would have increased the chances of their children becoming full-blown Thalassemia patients.


The child could get an affected gene from one parent and a normal one from the other. That would make him / her a “carrier.” Receiving both normal genes would make the child normal. But if the child is a recipient of both the affected genes, he would be a patient, joining hundreds across the State in their lifelong struggle to survive!

The cost of managing Thalassemia through monthly transfusions works out to a prohibitive Rs 1.5 lakh per year. Medications are a must because continued transfusions could lead to many side effects; and the accumulated iron affects the heart, liver and growth of the child, explained Dr Latha Jagannathan, Medical Director & Managing Trustee, Rotary, Bangalore-TTK Blood Bank.

By the time a Thalassemic child is 15 years of age, he would have gone through about 250 blood transfusions, 4000 injections of desferioxamine (to combat iron accumulation) and a needle in his/her body for over 40,000 hours!

Offering free blood transfusions to about a hundred patients since 2009, the TTK Blood Bank (www.bmstindia.org, 080 25287903) had realized that awareness about Thalassemia was dangerously low even among families of patients.  “Pregnant women reported only by their second and third trimester to the antenatal clinics, which was too late for any action related to prenatal diagnosis. The partners/husbands also showed poor acceptance for testing and follow-up action. This impacted on the willingness for counseling and follow-up with the affected families.”

To get quicker relief and appropriate blood for newborns, the Bank has now appealed to pediatricians and hematologists to refer the baby to them before regular transfusions are instituted. That would help in screening the extended family for “carrier” statistics and subsequent counselling.

The Blood Bank (also conducts free testing and genetic counseling for relatives of Thalassemia patients, besides free pre-natal test for pregnant women who are Thalassemia carriers. The Bank has around 500 phenotyped, special blood donors to find matched-blood for Thalassemia and other multi-transfused patients

Of the 600 relatives of Thalassemia patients who were tested at the blood bank, a high 40 per cent were found to be “carriers.” About two to five per cent of the population in the State could fall in that category. Countrywide, there are an estimated 30-40 million Thalassemia (affected gene) carriers –Amitabh Bachhan is one among them--, and every year approximately 10,000-12,000 children are born with Thalassemia Major. It is higher among certain ethnic communities where intra-family and intra-community marriages are common. 

Go to Top

Photo Gallery
Mayawati is garlanded after she was unanimously elected as the National President of BSP for...

Mayawati is garlanded after she was unanimously elected as the National President of BSP for...

Protesters set a police vehicle on fire in Ukhrul on Saturday demanding immediate solution to...

Protesters set a police vehicle on fire in Ukhrul on Saturday demanding immediate solution to...

Traffic chaos in Surat on Saturday...

Traffic chaos in Surat on Saturday...

A 98-metre long under construction bridge collapses over a stream of Bagmati and Lakhani rivers...

A 98-metre long under construction bridge collapses over a stream of Bagmati and Lakhani rivers...

Sukumar, a Bangalore airport customs officer supporter of Hubli Tigers seen during KPL Match...

Sukumar, a Bangalore airport customs officer supporter of Hubli Tigers seen during KPL Match...

Clay Ganpati referees the Brazilian and Argentine undeers (mouse) have been installed by a family...

Clay Ganpati referees the Brazilian and Argentine undeers (mouse) have been installed by a family...

Hindu devotees light incense and offer prayers to a snake on Nag Panchami festival in Jammu...

Hindu devotees light incense and offer prayers to a snake on Nag Panchami festival in Jammu...

A Hindu devotee whisper her wishes into the ear of an idol of elephant-headed Hindu god...

A Hindu devotee whisper her wishes into the ear of an idol of elephant-headed Hindu god...

England's Morgan leaves the field after being dismissed for 10 runs during the ODI against India ...

England's Morgan leaves the field after being dismissed for 10 runs during the ODI against India ...

Union Finance Minister Arun Jaitley at a press conference at National Media Centre in New Delhi ...

Union Finance Minister Arun Jaitley at a press conference at National Media Centre in New Delhi ...

Copyright 2014, The Printers (Mysore) Private Ltd., 75, M.G Road, Post Box 5331, Bangalore - 560001
Tel: +91 (80) 25880000 Fax No. +91 (80) 25880523