Press Esc to close
Friday 26 August 2016
News updated at 8:11 AM IST
Weather
Max: 27.6°C
Min : 21°C
In Bengaluru
Sunny day

'Include haemophilia, thalassaemia in benchmark disabilities'

New Delhi, Nov 24,2012 (IANS)

The Haemophilia Federation India (HFI) Saturday submitted a memorandum to President Pranab Mukherjee to include haemophilia and thalassaemia in the category of benchmark disabilities in the Rights of Persons with Disabilities Bill, 2012.

The bill, which will replace the Persons with Disabilities Act, 1995, has 18 disabilities including haemophilia and thalassaemia.

But the two disorders have been excluded from the benchmark disabilities section, which promises the security of a government job.

"Haemophilia and thalassaemia are life-threatening disorders. Affected people cannot work without job security," S.S. Roychoudhury, chief executive officer of HFI, told IANS.

He demanded the bill must be introduced during the ongoing winter session of parliament.

The HFI also sent a memorandum to the ministry of social justice and empowerment and held a demonstration in at Jantar Mantar in the capital.

According to Mukesh Garodia, a 39-year-old haemophiliac, a muscle spasm or a minor cut can be fatal for a person with the disease."A cramp in my wrist can lead to internal bleeding or profuse bleeding if I cut my finger, as the blood will not clot normally, making me bed-ridden for weeks or months at a stretch," Garodia said.

"A private employer will definitely not want to hire me because I can fall sick anytime. That's why we need job security from the government," said Garodia, a businessman from Guwahati, Assam.

The HFI has also demanded a provision for insurance coverage and employment without discrimination for people with haemophilia and thalassaemia.


Go to Top

Photo Gallery
Children dressed Radha Krishna on the occasion of Sri Krishna Janmashtami celebrations...

Children dressed Radha Krishna on the occasion of Sri Krishna Janmashtami celebrations...

Renowned artist Partha Das hands over a potrait of Mother Teresa to Sister Lysa...

Renowned artist Partha Das hands over a potrait of Mother Teresa to Sister Lysa...

Sarbananda Sonowal feeding baby elephants rescued during the recent floods at Wildlife...

Sarbananda Sonowal feeding baby elephants rescued during the recent floods at Wildlife...

Members of AISA and JNUSU shout slogans during their protest in connection of JNU rape case...

Members of AISA and JNUSU shout slogans during their protest in connection of JNU rape case...

Devotees form a human pyramid to celebrate the festival of Janmashtami, marking the birth...

Devotees form a human pyramid to celebrate the festival of Janmashtami, marking the birth...

A devotee performs prayers at a Lord Shiva temple submerged in flood water of Ganga River...

A devotee performs prayers at a Lord Shiva temple submerged in flood water of Ganga River...

An aerial view of a flooded area in Allahabad on Thursday...

An aerial view of a flooded area in Allahabad on Thursday...

A view of lighting at Sri Krishna Janamsthan temple during Sri Krishna Janmashtami festiva...

A view of lighting at Sri Krishna Janamsthan temple during Sri Krishna Janmashtami festiva...

Muslim women carrying their children dressed up as Lord Krishna and Radha for a program...

Muslim women carrying their children dressed up as Lord Krishna and Radha for a program...

Bollywood actress Sonakshi Sinha at a press conference to promote her upcoming film in Jaipur...

Bollywood actress Sonakshi Sinha at a press conference to promote her upcoming film in Jaipur...

Copyright 2014, The Printers (Mysore) Private Ltd., 75, M.G Road, Post Box 5331, Bengaluru - 560001
Tel: +91 (80) 25880000 Fax No. +91 (80) 25880523