Press Esc to close
Saturday 01 August 2015
News updated at 2:59 AM IST
Weather
Max: 21°C
Min : 33°C
In Bengaluru
Partially cloudy

'Include haemophilia, thalassaemia in benchmark disabilities'

New Delhi, Nov 24,2012 (IANS)

The Haemophilia Federation India (HFI) Saturday submitted a memorandum to President Pranab Mukherjee to include haemophilia and thalassaemia in the category of benchmark disabilities in the Rights of Persons with Disabilities Bill, 2012.

The bill, which will replace the Persons with Disabilities Act, 1995, has 18 disabilities including haemophilia and thalassaemia.

But the two disorders have been excluded from the benchmark disabilities section, which promises the security of a government job.

"Haemophilia and thalassaemia are life-threatening disorders. Affected people cannot work without job security," S.S. Roychoudhury, chief executive officer of HFI, told IANS.

He demanded the bill must be introduced during the ongoing winter session of parliament.

The HFI also sent a memorandum to the ministry of social justice and empowerment and held a demonstration in at Jantar Mantar in the capital.

According to Mukesh Garodia, a 39-year-old haemophiliac, a muscle spasm or a minor cut can be fatal for a person with the disease. "A cramp in my wrist can lead to internal bleeding or profuse bleeding if I cut my finger, as the blood will not clot normally, making me bed-ridden for weeks or months at a stretch," Garodia said.

"A private employer will definitely not want to hire me because I can fall sick anytime. That's why we need job security from the government," said Garodia, a businessman from Guwahati, Assam.

The HFI has also demanded a provision for insurance coverage and employment without discrimination for people with haemophilia and thalassaemia.


Go to Top

Photo Gallery
A farmer plants saplings in a paddy field on the outskirts of in Agartala...

A farmer plants saplings in a paddy field on the outskirts of in Agartala...

Leopard caught in forest department cage at CSIR premises, Manadavadi Road in Mysuru on Friday...

Leopard caught in forest department cage at CSIR premises, Manadavadi Road in Mysuru on Friday...

Actress Chitrangada Singh during the inauguration of a diamond showroom in Bengaluru on Friday...

Actress Chitrangada Singh during the inauguration of a diamond showroom in Bengaluru on Friday...

Artists from Gujarat perform a dance at the Travel and Tourism Fair at Netaji Indoor Stadium...

Artists from Gujarat perform a dance at the Travel and Tourism Fair at Netaji Indoor Stadium...

A woman prays as others take holy dips at Sangam, the confluence of the Rivers Ganges...

A woman prays as others take holy dips at Sangam, the confluence of the Rivers Ganges...

School children pay tribute to former President APJ Abdul Kalam in Gurgaon on Friday...

School children pay tribute to former President APJ Abdul Kalam in Gurgaon on Friday...

Securitymen guard parliament house during the monsoon session in New Delhi on Friday...

Securitymen guard parliament house during the monsoon session in New Delhi on Friday...

Congress Vice President Rahul Gandhi meeting agitating students of FTII...

Congress Vice President Rahul Gandhi meeting agitating students of FTII...

Dukhtaran-e-Millat activists holding placards during their protest against the hanging of Yakub...

Dukhtaran-e-Millat activists holding placards during their protest against the hanging of Yakub...

Policemen in action after a clash between BJP workers and AIIMS coordination committee members...

Policemen in action after a clash between BJP workers and AIIMS coordination committee members...

Copyright 2014, The Printers (Mysore) Private Ltd., 75, M.G Road, Post Box 5331, Bengaluru - 560001
Tel: +91 (80) 25880000 Fax No. +91 (80) 25880523