Press Esc to close
Monday 28 July 2014
News updated at 3:45 PM IST
Weather
Max: 0°C
Min : 0°C
In Bangalore
Sunny day

'Include haemophilia, thalassaemia in benchmark disabilities'

New Delhi, Nov 24,2012 (IANS)

The Haemophilia Federation India (HFI) Saturday submitted a memorandum to President Pranab Mukherjee to include haemophilia and thalassaemia in the category of benchmark disabilities in the Rights of Persons with Disabilities Bill, 2012.

The bill, which will replace the Persons with Disabilities Act, 1995, has 18 disabilities including haemophilia and thalassaemia.

But the two disorders have been excluded from the benchmark disabilities section, which promises the security of a government job.


"Haemophilia and thalassaemia are life-threatening disorders. Affected people cannot work without job security," S.S. Roychoudhury, chief executive officer of HFI, told IANS.

He demanded the bill must be introduced during the ongoing winter session of parliament.

The HFI also sent a memorandum to the ministry of social justice and empowerment and held a demonstration in at Jantar Mantar in the capital.

According to Mukesh Garodia, a 39-year-old haemophiliac, a muscle spasm or a minor cut can be fatal for a person with the disease. "A cramp in my wrist can lead to internal bleeding or profuse bleeding if I cut my finger, as the blood will not clot normally, making me bed-ridden for weeks or months at a stretch," Garodia said.

"A private employer will definitely not want to hire me because I can fall sick anytime. That's why we need job security from the government," said Garodia, a businessman from Guwahati, Assam.

The HFI has also demanded a provision for insurance coverage and employment without discrimination for people with haemophilia and thalassaemia.

Go to Top

Photo Gallery
Force India Formula One driver Sergio Perez sits in his car after a crash during the Hungarian F1...

Force India Formula One driver Sergio Perez sits in his car after a crash during the Hungarian F1...

Cars burnt in clashes between two communities a day before is being removed by crane...

Cars burnt in clashes between two communities a day before is being removed by crane...

Renovation work being carried out by the NDMC at the Lodhi Garden in New Delhi...

Renovation work being carried out by the NDMC at the Lodhi Garden in New Delhi...

A man holds an umbrella as he rides a bicycle through a street during monsoon rains in Mumba....

A man holds an umbrella as he rides a bicycle through a street during monsoon rains in Mumba....

Flooded street duirng the continue rain in Mumbai...

Flooded street duirng the continue rain in Mumbai...

A boy sits on his handmade raft as he collects floating recyclable material in the waters...

A boy sits on his handmade raft as he collects floating recyclable material in the waters...

Muslims shout slogans during a demonstration to protest against Israeli airstrikes on Gaza strip...

Muslims shout slogans during a demonstration to protest against Israeli airstrikes on Gaza strip...

Muslims throng a marketplace near the Jama Mosque illuminated during the holy month of Ramadan...

Muslims throng a marketplace near the Jama Mosque illuminated during the holy month of Ramadan...

Shoppers crowd at a market ahead of the Eid al-Fitr festival in Ahmedabad. The Eid al-Fitr...

Shoppers crowd at a market ahead of the Eid al-Fitr festival in Ahmedabad. The Eid al-Fitr...

Muslims prepare plates of food for an Iftar (breaking of fast) meal, inside a mosque during the...

Muslims prepare plates of food for an Iftar (breaking of fast) meal, inside a mosque during the...

Copyright 2014, The Printers (Mysore) Private Ltd., 75, M.G Road, Post Box 5331, Bangalore - 560001
Tel: +91 (80) 25880000 Fax No. +91 (80) 25880523