Press Esc to close
Wednesday 22 October 2014
News updated at 2:50 AM IST
Weather
Max: 0°C
Min : 0°C
In Bangalore
Sunny day

'Include haemophilia, thalassaemia in benchmark disabilities'

New Delhi, Nov 24,2012 (IANS)

The Haemophilia Federation India (HFI) Saturday submitted a memorandum to President Pranab Mukherjee to include haemophilia and thalassaemia in the category of benchmark disabilities in the Rights of Persons with Disabilities Bill, 2012.

The bill, which will replace the Persons with Disabilities Act, 1995, has 18 disabilities including haemophilia and thalassaemia.

But the two disorders have been excluded from the benchmark disabilities section, which promises the security of a government job.


"Haemophilia and thalassaemia are life-threatening disorders. Affected people cannot work without job security," S.S. Roychoudhury, chief executive officer of HFI, told IANS.

He demanded the bill must be introduced during the ongoing winter session of parliament.

The HFI also sent a memorandum to the ministry of social justice and empowerment and held a demonstration in at Jantar Mantar in the capital.

According to Mukesh Garodia, a 39-year-old haemophiliac, a muscle spasm or a minor cut can be fatal for a person with the disease. "A cramp in my wrist can lead to internal bleeding or profuse bleeding if I cut my finger, as the blood will not clot normally, making me bed-ridden for weeks or months at a stretch," Garodia said.

"A private employer will definitely not want to hire me because I can fall sick anytime. That's why we need job security from the government," said Garodia, a businessman from Guwahati, Assam.

The HFI has also demanded a provision for insurance coverage and employment without discrimination for people with haemophilia and thalassaemia.

Go to Top

Photo Gallery
A major fire that broke out in the crackers market in Faridabad...

A major fire that broke out in the crackers market in Faridabad...

On the eve of Diwali Renowned sand artist Sudarsan Pattnaik created a sand sculpture of Kali...

On the eve of Diwali Renowned sand artist Sudarsan Pattnaik created a sand sculpture of Kali...

Indian passengers rest on a crowded platform ahead of Diwali, the Hindu festival of lights...

Indian passengers rest on a crowded platform ahead of Diwali, the Hindu festival of lights...

Indian soccer player Peter Biaksangzuala, center, performs flips as he celebrates a goal...

Indian soccer player Peter Biaksangzuala, center, performs flips as he celebrates a goal...

Woman buying earthen lamps at a market ahead of the Diwali festival...

Woman buying earthen lamps at a market ahead of the Diwali festival...

School children paint their faces during Diwali celebrations...

School children paint their faces during Diwali celebrations...

A huge rangoli in front of Swaminarayan Temple...

A huge rangoli in front of Swaminarayan Temple...

Volunteers of Azad Hind taking out a procession to mark the Azad Hind Foundation Day...

Volunteers of Azad Hind taking out a procession to mark the Azad Hind Foundation Day...

Family members paying tribute to police martyrs during Police Commemoration Day...

Family members paying tribute to police martyrs during Police Commemoration Day...

TRS activists set affire chairs at the TDP office in Nalgonda...

TRS activists set affire chairs at the TDP office in Nalgonda...

Copyright 2014, The Printers (Mysore) Private Ltd., 75, M.G Road, Post Box 5331, Bangalore - 560001
Tel: +91 (80) 25880000 Fax No. +91 (80) 25880523