Years ago, I took care of a little girl whose mother worried tremendously about her clumsiness. When she was 4 or 5, my patient was tripping and falling more than other children her age, her mother thought. She had trouble with preschool clapping games. The mother was distressed. She herself had been “that kid,” the clumsy one, the last one chosen for every team.
For a long time, a variety of terms were used in medicine and education to describe children who struggled with coordination but had no underlying condition – terms like the ominous-sounding minimal brain dysfunction, the milder movement-skill problems, and yes, clumsy child syndrome. In 1994, these were consolidated under a single diagnosis, developmental coordination disorder, which covers a wide range of children who may struggle with anything from handwriting to riding a bicycle.
There is always a risk when you apply a diagnosis, always a chance that it will be seen as “pathologising” or stigmatising children. Are kids better off thinking of themselves as just kind of awkward? Should parents shrug and say, “No one in our family is a good dancer?”
There is a perception that clumsy children are “just children who aren’t good at sports,” said John Cairney, a professor of family medicine at McMaster University in Hamilton, Ontario, which maintains a website about the disorder with useful advice for parents. It’s more important, he said, to think about “how it affects children and adults in everyday activities – tying shoelaces, using knives and forks.”
The need for a diagnosis depends on whether the child is actually struggling. Pediatricians and pediatric neurologists do sometimes encounter parents who worry because a child isn’t gifted at sports, or at a particular sport. Not being gifted, or even good, at sports is not a diagnosis, and it’s probably more important for the child’s well-being to help parents find the child’s real strengths and inclinations.
“Some of these kids come in referred to me, and they really look pretty normal; a lot is parental anxiety,” said Dr Stephen Nelson, a pediatric neurologist and an associate professor of pediatrics at Tulane University in New Orleans, who wrote the Medscape article on developmental coordination disorder.
On the other hand, a child whose fine-motor skills are far behind others of his age, may struggle to put on clothing, or feel bad about activities that children do for fun. And there are children whose problems go beyond just being average (or a little worse) at basic athletic skills, and those children can find themselves dreading gym class, and in some cases even being bullied.
Modifying environment
Taking the clumsy child for evaluation is all about whether the child could use some help. That may involve modifying the child’s environment: Lots of children are referred for evaluation because of dysgraphia, or terrible handwriting. Learning how to use a keyboard can make a huge difference for their school functioning.
Occupational therapy is a mainstay for these children. They have to practise the specific skills they want to improve.
An evaluation may help ease out problems that aren’t coordination issues. Some children look clumsy because they’re distracted, not paying attention to the task at hand. Others may have visual impairments. Doctors worry more if a child is delayed in several realms at once; if speech, fine-motor and gross-motor are all lagging. Most concerning of all is when a child who wasn’t originally clumsy starts to lose coordination skills, or begins to walk differently. Such a child should definitely be evaluated, because something new and medically serious could be going on.
So what about my patient? Well, she illustrates another point: Developmental coordination disorder is found more often among children with other issues, like attention problems, learning issues and autism. If a child is not doing well in school and also seems uncoordinated, that may be a reinforcing reason to have developmental and academic testing done.
“In general, most of this gets better with time,” Nelson said. However, he added, it’s not something that children completely outgrow; clumsy children, on the whole, tend to become clumsy adults.
“We need to do more to support children’s global motor development,” Cairney said, “not to ensure they become athletes, but to ensure they can participate in a range of activities.”