In this episode of the Lead, Prasanna Shirol from the Lysosomal Storage Disorder Support Society India talks about helping children who are affected by rare diseases.
Ahmed Shariff: Hi and welcome to another episode of the Lead by DH Radio. Today we are joined by Mr Prasanna Shirol, who has co-founded and presided over the first national parents' support group for children with ultra-rare diseases, with the goal of raising awareness and shared resources. Hi sir and welcome to DH Radio.
Prasanna Shirol: Thanks for having me.
Ahmed: How do you deal with these rare diseases, beacuse a lot of research has to be done to know their causes and how to be treated. How do you deal with people affected by these rare diseases?
Prasanna: There are 7,000 rare diseases in the world. The major challenge is in diagnosing them. The average diagnosing period is 7 years worldwide even today...
To know more about the conversation listen to the podcast.