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rare disease

A rare disease and a family’s story

In India where basic healthcare is still not accessible, some citizens are calling attention to disorders with low prevalence. Prasanna Shirol shares what this journey looks like. His daughter was India’s first Pompe patient.

30 March 2024, 00:00 IST

A rare disease and a family’s story

A rare disease and a family’s story

A rare disease and a family’s story

30 March 2024, 00:00 IST

Five books on rare diseases

Metrolife’s reading list zooms in on a few such diseases and inspiring stories of patients and their caregivers.

28 February 2024, 00:28 IST

Five books on rare diseases

Five books on rare diseases

Five books on rare diseases

28 February 2024, 00:28 IST

India to manufacture expensive medicines for 13 rare diseases: Govt

In the first phase, four such medicines have received the marketing approval while another four drugs are under process for approval. These eight medicines will be needed to treat six rare diseases, most of them being genetic in nature.

24 November 2023, 19:24 IST

India to manufacture expensive medicines for 13 rare diseases: Govt

India to manufacture expensive medicines for 13 rare diseases: Govt

India to manufacture expensive medicines for 13 rare diseases: Govt

24 November 2023, 19:24 IST

Fundraiser for kids with rare disease

30 May 2023, 17:54 IST

Fundraiser for kids with rare disease

Fundraiser for kids with rare disease

Fundraiser for kids with rare disease

30 May 2023, 17:54 IST

Researchers tie up for treatment for rare diseases

Inadequate early-diagnosis systems and staggeringly high treatment costs make RGD a complex challenge

25 April 2023, 23:19 IST

Researchers tie up for low-cost treatment for rare genetic disorders

Researchers tie up for low-cost treatment for rare genetic disorders

Researchers tie up for treatment for rare diseases

25 April 2023, 23:19 IST

Customs duty on drugs for rare diseases cut to zero

The government has exempted Pembrolizumab (Keytruda), used in treatment of various cancers, from basic customs duty

30 March 2023, 17:04 IST

Customs duty on drugs for rare diseases cut to zero

Customs duty on drugs for rare diseases cut to zero

Customs duty on drugs for rare diseases cut to zero

30 March 2023, 17:04 IST

In Pics | Celebrities who were diagnosed with rare diseases

While celebrities often prefer to hide their personal and private lives and in particular their health conditions, there are a few who broke this barrier and publicly spoke about their illnesses. Here we take a look at some celebrities who have been vocal after being diagnosed with rare diseases.

18 June 2022, 07:20 IST

In Pics | Celebrities who were diagnosed with rare diseases

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In Pics | Celebrities who were diagnosed with rare diseases

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In Pics | Celebrities who were diagnosed with rare diseases

18 June 2022, 07:20 IST

Cash aid for rare disease patients hiked to Rs 50 lakh

While it was previously offered to only 40% of the population eligible under the Pradhan Mantri Jan Arogya Yojana for a certain category of diseases, it will now be available to all

22 May 2022, 22:44 IST

Cash aid for rare disease patients hiked from Rs 20 lakh to Rs 50 lakh

Cash aid for rare disease patients hiked from Rs 20 lakh to Rs 50 lakh

Cash aid for rare disease patients hiked to Rs 50 lakh

22 May 2022, 22:44 IST

Delhi HC slams Centre over unused rare diseases fund

A bench of the high court questioned why the funds were not being given to children suffering from rare diseases despite an availability of Rs 193 crore

07 December 2021, 14:47 IST

Can’t let kids with rare diseases die, no explanation by Centre for not utilising fund: Delhi HC

Can’t let kids with rare diseases die, no explanation by Centre for not utilising fund: Delhi HC

Delhi HC slams Centre over unused rare diseases fund

07 December 2021, 14:47 IST

Balm for rare diseases

05 October 2021, 10:47 IST

Balm for rare diseases

Balm for rare diseases

Balm for rare diseases

05 October 2021, 10:47 IST