<p>In this episode of the Lead, Prasanna Shirol from the Lysosomal Storage Disorder Support Society India talks about helping children who are affected by rare diseases.<br /><br /></p>.<p><br /><br /><strong>Ahmed Shariff:</strong> Hi and welcome to another episode of the Lead by DH Radio. Today we are joined by Mr Prasanna Shirol, who has co-founded and presided over the first national parents' support group for children with ultra-rare diseases, with the goal of raising awareness and shared resources. Hi sir and welcome to DH Radio.</p>.<p><strong>Prasanna Shirol: </strong>Thanks for having me.</p>.<p><strong>Ahmed: </strong>How do you deal with these rare diseases, beacuse a lot of research has to be done to know their causes and how to be treated. How do you deal with people affected by these rare diseases?</p>.<p><strong>Prasanna: </strong>There are 7,000 rare diseases in the world. The major challenge is in diagnosing them. The average diagnosing period is 7 years worldwide even today...</p>.<p>To know more about the conversation listen to the podcast.</p>
<p>In this episode of the Lead, Prasanna Shirol from the Lysosomal Storage Disorder Support Society India talks about helping children who are affected by rare diseases.<br /><br /></p>.<p><br /><br /><strong>Ahmed Shariff:</strong> Hi and welcome to another episode of the Lead by DH Radio. Today we are joined by Mr Prasanna Shirol, who has co-founded and presided over the first national parents' support group for children with ultra-rare diseases, with the goal of raising awareness and shared resources. Hi sir and welcome to DH Radio.</p>.<p><strong>Prasanna Shirol: </strong>Thanks for having me.</p>.<p><strong>Ahmed: </strong>How do you deal with these rare diseases, beacuse a lot of research has to be done to know their causes and how to be treated. How do you deal with people affected by these rare diseases?</p>.<p><strong>Prasanna: </strong>There are 7,000 rare diseases in the world. The major challenge is in diagnosing them. The average diagnosing period is 7 years worldwide even today...</p>.<p>To know more about the conversation listen to the podcast.</p>
