A nine-year-old boy in Kyamahalli in the taluk is suffering from Budd-Chiari syndrome, a rare disease that affects the functioning of liver.
With his family’s inability to bear the medical expenses, Naveen Kumar’s condition has turned critical.
His parents, Chandru and Shobha, workers at a coffee estate, have been running from pillar to post for the past two years to get him the necessary treatment. The disease has rapidly progressed in the past six months and now, Naveen is not able to stand, sit or even sleep with the bulged stomach.
The disease progresses from severe upper abdominal pain, jaundice, hepatomegaly (enlarged liver), elevated liver enzymes and eventually leading to cirrhosis and liver failure.
The boy was diagnosed with the disease by doctors at the primary health centre in the village. They advised the parents to take him to either Wenlock hospital in Mangalore; Bangalore Indira Gandhi National Paediatric hospital or Narayana Hrudyalaya. The surgeries are estimated to cost Rs three lakh. Unable to provide the treatment, the parents have brought their son home.
Dr Santosh at the PHC has taken all possible steps for the tests and treatment under Vajpayee health scheme. But the costs are exceeding. The boy can be provided financial assistance through his SBM bank account SBM 64119032705, IFC code 40048.