Project IDEEA to be renewed on January 30

Dr Annamma Kurien, Associate Dean and Head of the Department of Pathology at Melaka Manipal Medical College and President of Manipal Haemophilia Society, said that IDEEA, a four-year project with Novo Nordisk Haemophilia Foundation (NNHF), has come to an end and will be renewed at a programme on January 30, 2016.

Manipal University had signed a memorandum of understanding with Novo Nordisk Haemophilia Foundation, Zurich, Switzerland, in 2012 for a project to identify patients with bleeding disorder in four districts in Karnataka, Kurien said. This includes Udupi, Shivamogga, Chikkamagaluru and Dakshina Kannada.

The project, Identification, Diagnosis, Education, Empowerment for Action (IDEEA) of patients with bleeding disorders in South India, has won NNHF’s ‘Project of the Year Award’ and was the first project in India to win the award.

The main feature of this project is to identify patients with bleeding disorders through ASHA workers, she informed. About 2,200 ASHAs under NHM were trained in bleeding disorders. With this training, they had to identify and report patients in the community through their door to door survey. She said the suspected patients were tested in the special coagulation testing facility to identify their bleeding problem.

In this venture, about 586 patients were tested and 88 patients were found to have bleeding disorder.

Kurien said Hemophilia is one of the common inherited bleeding disorders due to deficiency of certain proteins in blood and is seen in men while women are carriers. Von Willebrand disease (vWD) is more common and can be seen in men and women. It causes a lot of problems in girls with excessive menstrual bleeding, she added.

Another important programme is the launch of ‘women bleeders’ programme’, which is being initiated through a fund supported by Cheryl D’ Ambrosio from My Girls Blood, USA and NNHF to will help girls and women with excessive menstrual bleeding to be tested free of cost, she added.

“Eighteen Haemophilia patients were empowered through higher education scholarships, provided through ‘Save One Life’ organization in USA”, said Martha Hopewell, Executive Director of the organisation.

These patients, in spite of their health and personal difficulties, could pursue their education. Four among them have been employed while others are completing their education.

The Hemophilia Federation of India (HFI), New Delhi, through its 78 chapters in the country, has covered 640 districts and Manipal Hemophilia Society is one its chapter.

There are 380 patients from Karnataka and Northern Kerala. Manipal University Pro Chancellor Dr H S Ballal, Vice Chancellor Dr Vinod Bhat will be the chief guests at the programme, IDEEA-Culmination and Continuation for Hemophilia Care’ on January 30.

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